Monday, May 22, 2006
It's Sunday!
Friday, May 19, 2006
May 19
May 18
Thursday, May 18, 2006
May 17
May 16th
May 15th
Mother's Day
It was a good mom's day. Jas took an pic of Brady and I that I love. Brady also made me a homemade card at daycare. How cute is that?! I am one lucky Mom!!! Unfortunately I've come to think of things as being "this is the last Mother's Day I have with Jason". It makes me so sad. But it really was a good day and I will always remember and treasure it.
Saturday, May 13, 2006
It's Friday!!
Thursday, May 11, 2006
Today was a bit better
Wednesday, May 10, 2006
Another day goes by
On a good note, the new pain medication he's on is working. It's making him extremely tired, but we're told that's normal as his body adjusts to it. In a few days it should be better. Just so glad he's not feeling any pain. I hope it lasts for awhile.
Pallative care called this afternoon and they've set me up with a trained cancer care volunteer who shares the same interests as me, etc. The pallative care coordinator thinks we'll make fast friends and wanted me to have someone here in Dauphin where I can go for coffee with, etc. I was very grateful to her for arranging it. Am just waiting for the volunteer to call me.
Tomorrow we meet with a lawyer to get our wills done and to talk about what else needs to be done. It will be a tough day.
Tuesday, May 09, 2006
Worst day of my life
Today is the worst day of my life. My wonderfuly husband, my best friend, the father to my son was told that he has only months left to live. The chemo isn't working and is destroying his liver. He is now jaundiced. The doctors have switched his meds and have taken him off the pain patches because he has no fat left on his body. It's not absorbing the medication. He has now lost 45 lbs since this all started. They've also put him on the "pot" pill. Something that actually made him laugh. I hope with all my heart that these meds ease the pain that he is in.
How can this be happening to us? We moved to Dauphin with so many hopes and dreams and have never been happier. It's all changed now. How do I go on without him and keep a semi normal life for my precious little boy? I am so scared of life without him. I can't even think of my son right now and what it's going to be like for him. I'm just devastated. Jas is in shock, scared, upset. I can't help him or make it go away. All I've been doing all day is crying or holding him.
He's going for a cat scan tomorrow morning on his liver. That's their main concern right now. We meet with the doctors tomorrow afternoon to see what they are planning. Thursday morning, a cancercare social worker is calling me for therapy. Braydon is also being set up with a child therapist and am waiting to find out when that is.
I don't know what to do anymore. I'm lost.
Sunday, May 07, 2006
Brady's birthday cake celebrations!
We had Braydon's birthday cake today. He was a little confused when we were telling him to blow out the candle and when we were all singing to him, but then he got right into it. He wouldn't eat any of his cake tho, too busy playing with the trucks on top.
He got a wheelbarrel and some clothes from Grandma and Grandpa. He thought it was pretty funny tipping it over. Can't really maneuver it around yet. He'll get better tho.
Grandma and Grandpa took him home with them for a couple of days. I have to go to Brandon tomorrow for a seminar and I'd be leaving too early to get him to daycare. Tuesday I have to take Jason in for bloodwork and see the chemo department. I already miss him like crazy. I want my Brady hugs and kisses!
Well, I need to get to bed, have to get up early tomorrow.
This is really for Saturday
Brady loves to help daddy in the yard.
Jason wanted to give me my birthday present early. Of course, how could I deny him?! I got a bike and it's what I've been wanting for awhile. I love it. We also got a carryon seat for the back of it so I can take Brady with me. Got him a bike helmut too. I took him for a ride last night. He loves it. I am so happy. I'll get some exercise and Brady will have some fun at the same time. Lots of places to go biking around here. Hardly any traffic and beautiful scenery.
Didn't do much else yesterday. Watched Hostile last night. I had heard mixed reviews. I actually liked it. It's gory like Saw but was glad at the way it ended. Not a movie for the peeps with a weak stomach.
Saturday, May 06, 2006
My munchkin visits the doc
Thursday, May 04, 2006
Got some scrapping done!
I swear, I think Optometrists are in a conspiracy together. Seriously. My contact ripped a week ago and I have to order new ones. I just had my eyes tested last spring, got new contacts and glasses. All I need is my prescription faxed to my new Optometrist here and they can order me new ones. Sounds easy, right? Apparently, it's not. I had to go sign a release form at new eye doctor's to have them fax it to my old eye doc and then for him to turn around and fax it back. Well, I call today, two days later. Ask if everything got back ok. The receptionist says yes, but I need to make an eye app't. I say, I just had one last spring. She said it doesn't matter. I say, oh but it does. We are, like most are, only covered by Blue Cross for eye app't every two years. I doubt my eyes have changed since last spring. So, receptionist says, well it'll be a "mini" appt. and he needs to see me before they order me a new pair of contacts. Now, I have to pay for this "mini" appt to be able to order contacts! I'm left without a choice, I have to have my contacts, so I have to wait now till next Friday to even get in to see this doc. Grrrr. Didn't matter I had an eye exam last spring, I just think they're all out to make a buck.
On a lighter note. Had otherwise a good day. Took Brady to daycare this morning. After ripping him off my leg I was able to leave. Jason pretty much slept all day. So it was just me. What do you think I did?? Yep, finally went into my scrapbook room. I made my first ever cards today. Hope the people who I sent them too, like 'em. No laughing either! Afterwards went and mailed them on the way to pick up Brady. He had a good day too apparently.
Came home, made supper, cleaned up, and decided to take Braydon for a walk in his wagon. Took Pennie too. About a block away from home, Pennie kept turning around, so I decided to take a look. I see my cat, Willow, following us too. She ended up following behing the wagon the whole walk. We must have looked pretty funny, Pennie pulling me, me pulling Braydon, the cat following.
Watched the OC tonite. Why is it at the end of each season, someone is getting arrested? You'd think they could come up with something different. But I'll still be watching the next show. Gotta find out how Cohen gets outta that one.
Well, I'm off to go watch CSI, looks like a good one! Finally Nick doesn't look like a 70's porn star anymore! HA!
Wednesday, May 03, 2006
New to this bloggin thing
I've been wanting one for awhile now. I love writing, love relaying my thoughts, emotions, etc. Am hoping that I can keep this interesting.
Today was a good day. Braydon actually slept in till 8:00!! I was shocked, I woke up before him. Jason was up already, watching tv. He didn't have a good night, feeling some pain. It actually decreased during the morning, which was very good. Finally was able to speak to an informative nurse here. She is going to set up counselling for us. I am so in need to be able to pour my heart out. I feel like I'm on an emotional roller coaster ride. One day, I'm bitchy, or I'm depressed, and then like today, I am happy. I think even Jas is going to speak to the therapist too. I hope so. Again, found out his doctor here was wrong. Jas probably isn't starting chemo next week again. See, I knew I heard the Oncologist right. He was to get chemo every four weeks. His chemo nurse told me she even questioned the doctor here. Ahhh, another sign to maybe switch to the woman doc. Least I get to meet her next week. I heard she's very good to talk too and takes time with her patients. Exactly what we need.
Evan came over this afternoon. He brought Brady a blow up pool and a ball for his birthday. Braydon, of course, wanted the pool set up now. Yeah right, that's ALL I need, is a pool full of water in my living room, dog and Braydon splashing around. Think, umm, Not!
Going to Brandon next Monday to do the Non Violence seminar I had missed. Should be interesting.
Tonight, Braydon and I watched American Idol. Glad Paris is gone and Taylor remained. Was a little worried. Tho I know that my Chris is going to take it all! Can't wait to hear his songs after Idol. Also watched the continuation of House. I watched the first part last night for the first time. I am hooked. It's a great show. Course, I come in when it's almost end of season. Am hoping I can catch up on repeats this summer.
So was sitting here, typing this and couldn't believe how hot I was getting. Turned off the desk lamp, thinking maybe that's why. Few minutes later, still getting hotter. Go to check the thermostat and it was set to 95!! WTH?! Turned it right off.
Well, think I'm off to bed now.